What evidence is available?

Sources of evidence	Information Provided	Limitation of Evidence
Parent / carer	First source of information and associated evidence.	Does not have specialist knowledge.
GPFR	The GP will be able to confirm the diagnosis.	All treatment for both sickle cell related problems and general health care are likely to be received via the treating hospital – the GP may not have any details about the child’s condition or care required. The GP will be most likely to provide information about very mild cases not having routine hospital treatment.
Consultant Haematologist / Clinical Nurse Specialist	Children who are severely affected by sickle cell disease are likely to receive all of their routine health care and their sickle cell related care through the haematology unit. This will always be the best source of information on diagnosis and disabling effects.	In a mild case there may be little information available from the hospital. The haematologist will always be able to provide supporting evidence in cases where disability is claimed or the condition is severe.

Department for Work and Pensions