What evidence is available?

Sources of Evidence	Information Provided	Limitation of Evidence
Parent/Carer	First source of information and associated evidence.	Does not have specialist knowledge.
GPFR	The GP will be able to confirm the diagnosis.	Children with haemophilia are likely to receive all their haemophilia care through the Haemophilia Comprehensive Care Centre and will only see the GP about non-haemophilia issues.
Hospital FR – Haemophilia Comprehensive Care Centre - Clinical Nurse Specialist or Consultant Haematologist.	If medical evidence relating to haemophilia and its treatment are required this is the best source of evidence.	Able to provide complete details on type and severity of haemophilia, treatment required frequency of home treatment and extent of disabling effects. Likely to be able to provide information on all aspects of a child’s health in children who require clotting factor therapy or who have complications of bleeding. Will be able to provide detailed information on presence of inhibitor and any disabling effects relating to neurological or joint complications from previous bleeds.

Department for Work and Pensions