What evidence is available?
It is important to determine from the customer who regularly manages their condition. It is also important to determine what kind of information you need. This enables contact with the appropriate healthcare professional is contacted.
| Sources of evidence | Information Provided | Limitation of Evidence |
|---|---|---|
| Parent / carer | First source of information and associated evidence. | Does not have specialist knowledge. |
| Neurologist /
Paediatrician |
Gives an overall profile of significant issues, medication and most up to date treatment and its effect. Nutritional status. Epilepsy control. Respiratory status. | It is important to determine from who is the individual that is regularly managing the condition. This enables contact with the appropriate healthcare professional. |
| Physiotherapist /
Occupational Therapist |
Provide details of movement difficulties such as gait and balance problems and ability to carry out tasks such as self-care. Likely to have knowledge of specialized equipment and aids being used. | Same as above |
| Orthopaedics | Details of outcome and any future surgical procedures to manage hip dislocation, scoliosis, spasticity and release of contractures etc. | Same as above |
| Speech / language Therapist | Give a profile of function in terms of language and communication skills, feeding skills and aspiration risks. | Same as above |
| School teacher, Educational Psychologist | Details of learning difficulties. Account of daily functioning and activities in school, including mobility, self care skills, communication and behavioural issues. | Same as above |
