Sources of evidence

Children and adults with major forms of Thalassaemia will be attending specialist hospital centres on a long-term basis for regular monitoring and treatment. Reports may be obtained from doctors, specialist nurses and other health care professionals working in these centres.

People with less severe types of Thalassaemia attend haematology clinics or are under the care of general practitioners. Medical reports may be obtained confirming that the anaemia is mild and asymptomatic.

Amended May 2009