Sources of evidence

Most cases of primary biliary cirrhosis will have been diagnosed and assessed in a hospital clinic. They will be followed up in gastro-enterology or specialist liver clinics to monitor treatment response and to determine when referral for liver transplantation should be considered. Hospital reports may be obtained from hospital doctors and specialist nurses working in these clinics.

People with early disease or whose condition progresses slowly, may visit the hospital infrequently. General Practitioner factual reports will confirm the diagnosis, provide details of drug treatment and information about other medical conditions that may contribute to care and mobility needs.

It may be appropriate to consider a claim under Special Rules for people with this condition who develop hepato-cellular carcinoma.

Amended April 2008