From: Myotonic Dystrophy Support Group [contact@mdsguk.org]
Sent: 09 February 2011 13:42
To: DWP Consultation DLAReform
Subject: Myotonic Dystrophy Support group

Follow Up Flag: Follow up
Flag Status: Completed

I am the National Co-ordinator of the Myotonic Dystrophy Support group, and also the Founder ,(dated 1989)
I represent 1900 families who have the condition of Myotonic Dystrophy, which is a muscular dystrophy, a genetic Neuromuscular condition.
Many people are concerned about loosing the Carer's allowance, and many of our families are caring for more than one person in the family who have this genetic condition.  I have highlighted this before with 'Contact a Family' Charity as the Carer should be getting more Carers allowances for caring for 2 .3 more affected family members.
My son has DLA , and because I am retired , I do not get carers allowance.... WHY NOT.?
It is wrong to take away carer's allowance for some people by means testing. 
Margaret Bowler, National Co-ordinator  Myotonic Dystrophy Support Gour